About the MDS Foundation
The Myelodysplastic Syndromes Foundation was established to provide an ongoing exchange of information relating to MDS.
The MDS Foundation is a global non-profit advocacy organization that for over 25 years has supported patients and their families as well as healthcare providers in the fields of MDS and its related diseases. Until the Foundation was set up, no formal working group had been devoted to MDS. Since its inception, we have conducted 16 international congresses in Austria, England, the United States (Chicago, Washington, DC), Spain (Barcelona, Valencia), Czech Republic, Sweden, France, Japan, Italy, Greece, Scotland, Germany, Denmark and Virtual. The 17th International Congress will be held in Marseille, France on 3-6 May 2023.
A major Foundation effort is our international information network. This network provides patients with referrals to Centers of Excellence, contact names for available clinical trials, sharing of new research and treatment options between physicians, and extension of educational support to physicians, nurses, pharmacists and patients.
In response to the needs expressed by patients, families, and healthcare professionals, we have established patient support groups, research funding opportunities, as well as professional and patient educational initiatives.
The MDS Foundation is a publicly supported organization, exempt from federal income tax under section 501(C)(3) of the IRS code.
For more information, please visit our website: www.mds-foundation.org
